Tag: Periods

Farewell Ovulation – Going Back on the Pill #Periodically 19

In news that was both disappointing and not at all unsurprising, my new doctor and I recently agreed that I will be going back on the pill. I’ve known for some time that the pill was likely to be the quickest source of relief for my dysmenorrhea (painful periods), menorrhagia (heavy periods), dyspareunia (painful sexual intercourse) and general pelvic pain, but it was an outcome I wanted to avoid given my experience with the pill in the past. For details read A Tale of Two Pills and #Periodically 13.

The decision, in the end, wasn’t nearly as hard as I thought it would be. The quickest way for me to get some relief at the moment is to stop ovulating, and the combined pill does just that. Getting the prescription was thought-provoking though:

Having been on Rigevidon (combined) and Cerelle (mini) in the past my main qualm was that I wanted to try a different dosage or brand this time. Now, because of the sad old state of our NHS, my gynaecology appointment was outsourced privately, so when the doc said I could go on Microgynon I nearly fell off my chair. Microgynon is technically the same as Rigevidon, it’s made up of a synthetic oestrogen and a synthetic progesterone that you take 21 days in a row and then you have a withdrawal bleed for a week – standard pill talk. BUT, Microgynon is the pill many my friends and sisters started on, had no problems with but were unexpectedly taken off of. Many of them have been switched to Rigevidon for no apparent reason. Maybe it’s paranoia but I am very suspicious that Rigevidon is simply cheaper than Microgynon.

The gynae gave me a two month prescription of Microgynon but it was a private prescription. The doctor recommended I take it to my GP and ask them to refill it so I could get it free on the NHS, since it’s contraception. I am doing exactly this when my GP says, “I’m going to put you on something called Rigevidon, it’s basically the same thing” – I was furious. So I said, “no, it’s going to be Microgynon or nothing, that’s the only reason I agreed to go back on the pill. ” I was ready for a fight, but he quickly said, “OK” and printed out a prescription for six months of Microgynon. I was floored that it was so easy to get what I wanted, which only further makes me suspicious that the problem with Microgynon and Rigevidon is a price one – but, I should add, that is pure speculation (but still, #SaveOurNHS).

So now I have the prescription the real drama starts. Over two and a half years ago I decided to come off the pill for several reasons. They were mostly because I had ended a relationship and wasn’t looking to get giggy with it, I wanted to try and get my sex drive back and to also get my mind back to something I recognised. I got so much more than I bargained for coming off the pill, good and bad. I got a new lease of life and creativity, my boobs dropped two cup sizes (to my delight), the world literally smelt different, I rediscovered my libido and I started having periods again. But equally, my periods were more painful than I remembered them being before, my skin got worse, I started spending money on sanitary products again and I discovered PMS. At that point in time, the pros outweighed the cons. The psychological benefits I felt coming off the pill were huge, and being able to track all these changes on Clue meant I could exploit them.

All good things come to an end however, and the last year has offered fresh pre, peri and post menstrual and ovulation symptoms and complications. As I’ve mentioned (a lot, sorry) discovering that sex hurt when it didn’t used to, was a real blow to my relationship with my body (and romantic interests) – what good was it to have my libido back if I couldn’t use it? My periods have left me exhausted and even grumpier than normal because I’ve become anaemic, and I’ve grown at least one hemorrhagic cyst, though there’s a lot of evidence to suggest there have been a few cysts that have been and gone.

There are a couple of things people have said to me since I found out I would be going back on the pill that I would like to address. I stand by what I’ve said about hormonal birth control in the past – I think it’s shit. There has to be a better way and I am confident there will be soon – I’m talking to you FemTech engineers. Since I am currently the most single and unsexed I have been since adolescence, my reasons for going on the pill at the moment are not for birth control. I still think the pill is a sorry excuse for birth control, one that has brought about both hugely beneficial social changes and immense personal problems. It is a concept that demands lots of criticism. This time, I am going on the pill to deliberately mess with my menstrual cycle in the hope of getting some relief. It might fix my problems, it might just ease my symptoms for a while, it might do nothing, hell, it could even make things worse, but without having more potentially disappointing surgery, it is my only option for now.

The other thing I’ve been asked is “do you think you’ll be paranoid about the negatives of the pill this time round, and therefore never give it a fair chance?” I thought so at first, but I am actually feeling really open minded about it. December was a real toughie pain-wise and anything that offers relief is my friend at the moment – it is worth a shot.

The last two years and seven months have seen twenty-six cycles – something I know thanks to the wonders of Femtech, particularly Clue. I have gotten to know my body in crazy amounts of detail, which has been both a blessing and a curse. I am really sad to be leaving this period (punny) of time behind, but I am going to try and see it as an opportunity. Since I have been tracking my cycles in great detail all this time, I am really going to be able to see the changes, good and bad, that the pill brings – plus, I get to try out Clue’s pill tracking functions for the first time. See, I’m already seeing the bright side.

I won’t be starting the pill for a couple of weeks, and I have no doubt that the first few months will be a little wild, but in the mean time I’m going to relish the natural peaks and falls of my hormones and look forward to less-pain in the next few months.

And to end this long (sorry) love letter to my natural menstrual cycle, I would just like to acknowledge that although I have tracked over 100 days of pain medication consumption during the last year or so, I have also tracked over 200 days of feeling happy, so that’s nice.

Going on the pill means I will be cutting my trial of Natural Cycles short so my review will be coming sooner than planned. Let me know on Twitter what you would like to hear about my experience with Natural Cycles and I’ll try to fit my responses in.

January 23, 2018
Persistence – #Periodically 17

Long time no #Periodically, but don’t fear I’m back with another exciting instalment of “WTF is happening in Hilary’s pelvis” – I’m sure you were all anxiously waiting.

So we left off with the discovery of two cysts, one functional (good), one hemorrhagic (bad) on my right ovary. The protocol is to wait six weeks to see if they go or grow. I also had a blood test taken the day after the first internal ultrasound and was informed there was something in those blood results that I needed to see a doctor about, but typically (#ToryBritain) the first available appointment was six weeks away. Conveniently though, it was scheduled for the day after the follow up ultrasound.

I had a couple of really rough weeks in the middle of the wait for “answers”. I was both stressing about what was wrong with my blood (who tests for PCOS and Ovarian Cancer, says something’s wrong but doesn’t tell you what?!), dealing with a sudden and random horrible outbreak of acne and a flare-up of top-notch pain. I was pretty miserable company for a fortnight (sorry friends and family – thank you for not disowning me).

Let’s throw it back to November 2016 for a second, where the first blood results I had to search for a problem revealed nothing. I did have slightly higher levels of androgens (male hormones) than normal, but nothing that warranted suspicion of PCOS (Polycystic Ovarian Syndrome). So when they found the cysts and something in my blood this November, I couldn’t help but wonder if I had just noticed symptoms of PCOS really early, and the androgens were now at a higher level and had been picked up in my blood. So what does any sane person do in this situation? I GOOGLED. I’m actually glad I did as I quickly learnt the surprising fact that despite the name, polycystic ovaries does not involve many cysts. It involves much smaller bubbles of fluid that grown on the ovaries in abundance. I don’t have that, so I relaxed. But my hairy disposition and sudden acne break out didn’t help calm my PCOS suspicions.

Now because life is cruel, the six weeks came around and I was due on my period the exact same day as the internal ultrasound. While offering some potential technical problems, it also meant I was super on edge as I tried to suppress my PMS in the hope of postponing my period (this actually worked remarkably well but it also postponed and intensified my PMS, would not recommend). The internal ultrasound goes smoothly albeit painfully, and the sonographer immediately says “oooooh no,” as she sees that the hemorrhagic cyst is still there. “That should have gone,” she said. Problem is, it didn’t grow either, which, she explained, means it’s unlikely I will be referred for any kind of treatment. So I have a “persistent hemorrhagic cyst”.

The next day I show up bright, early and menstruating for my blood test results. Happily, it was nothing too serious, just that my iron levels are a tiny bit low, which is consistent with having too heavy periods. Unfortunately, I hadn’t seen this doctor before, and having to explain all my symptoms all over again mid the hormonal meltdown I was having, resulted in some really attractive sobbing as I explained the last few years of pills, pain and frustration. This sobbing only worsened when she informed me that contrary to what I’d been told, Dr C never actually got around to referring me to a gynae in Essex. I explained to her that a big part of my frustration is that in 2015 I ran a marathon, in 2016 I ran a marathon but in 2017 I need a lie down after a dog walk. Not being able to have sex isn’t great either obviously, but exercise is a really great way of feeling like you have some control over your body, it’s difficult losing that control.

However, the sobbing seems to have worked as Dr E has referred me to a local hospital, which should be quicker, and like the God she clearly is, she gave me something. I remain a little perplexed that no one has ever even offered me the medication she prescribed before, as its literal purpose is lightening menstrual flow and potentially easing period pain. It’s non-hormonal and I take it only when I’m on – pixie dust, clearly (Mefenamic Acid IRL). I can’t say I’ve noticed a huge difference thus far, but my period pain has been a little more manageable. I can’t take ibuprofen with it, which makes me nervous that if it doesn’t work then my main source of pain relief is out the window, but we’ll give it a good ol’ college try.

The latest venture.

There are lots of frustrating things about this situation, but the two I’ve learnt this week are that the combined pill might stop the cysts from growing in the first place but that no doctor wants to put me on it because of DVT and breast cancer risk factors. The other is that both the sonographer and Dr E’s response to my pain outside of my period has been to say, “yes, sometimes cysts can be painful”. Trying to communicate to them that whatever is causing my pain, cyst or otherwise, is really painful often is proving difficult.

So with a bit of persistence, like the pesky cyst, I’ve managed to get something to help with period pain, iron tablets that should help with sleepiness, and hopefully a decent and quick referral. It’s not exactly good news, but it’s something.

Confused? Start the saga from the beginning here.

December 11, 2017
Articulating Pain #Periodically 11

I think I have always been quite a moany person. When I was little I would moan about going to summer camp or after school club. As I got older I moaned about maths and music lessons. Then I started moaning about redundant news stories in prime time spots, the patriarchy and inequality, Brexit, tuition fees. Last week I was moaning about how annoying people were for moaning about Big Ben going quiet.

I’ve also, from time to time, moaned about pain. I remember following my mum around the supermarket when I was eleven or so, complaining about a dull achey back ache. I moaned about the same pain when I started my period a few years later. I moaned about it even more when I started working at pizza delivery chains and the pain would present itself after an hour or so of a five hour standing shift.

I have a family full of aches and pains. Moaning about back ache or knee pain is pretty normal business for us. Remarkably, given I have two older sisters, moaning about period pain wasn’t much of a thing in our house (until I hit puberty, that is). I remember texting my mum under the desk in French class the day after I started my period saying ‘I think I have period pain’ and she said ‘try to move around’. An answer I found very unhelpful at the beginning of double French.

My friends say I moaned about my periods at sixth form. I can’t say I remember that – but it does sound like me. When I started university I was having monthly periods for the first time because of the pill, and that definitely made me more aware of my periods and the pain that accompanied them. I remember paracetamol, hot water bottles and bean bags becoming monthly essentials.

Then of course I stopped having periods. I won’t go into that again. For the ‘fun’ of that adventure read A Tale of Two Pills.

Fast forward a year and a half and I’m in Clermont-Ferrand, France. I’ve been off of the pill for three weeks and my boobs suddenly hurt. I moan about it and my parents and, quite rightly, tell me they don’t care. A week later I have my menarche 2.0. A week of tender breasts before my period starts is now a thing. It was never a thing before I was on the pill.

This very second, I am using Clue and my old diaries to trace when exactly the pain got noteworthy. I had three periods that seemingly passed as nonevents and then we get to January 2015. After a 63 days cycle my period promptly started in a crêperie in Lyon three hours after a friend from home had arrived to visit. Two days later, I got up and began my long commute into the Rhône-Alps countryside and started to feel sick from some sort of new period pain. When I arrived at work I taught one class and then vomited in the toilet before going home – I never take sick days. Actually I’ll just quote my diary here, I think 2016 Hilary was quite eloquent about it:

‘I’m finally having a period but once I got to school I felt so faint and sick and there was basically blood pouring out of me. It was horrible. Very strange day, David Bowie died.’

My next period, seven weeks later, appears in my diary as a divine event. It is the day I wrote a certain blood/vagina quote as discussed in Blood, Books and Vagina. I also wrote:

‘The more I learn about vaginas, periods, childbirth and motherhood the more my curiosity grows.’

I was clearly on some sort of (hormone induced?) vagina trip. Though if you’ve read Blood, Books and Vagina you’ll know I had just read Naomi Wolf’s Vagina: A New Biography.

Right, so now we’re in March 2016. Once again I’ll leave it to past me (and Shania Twain, apparently):

‘Man, I feel like woman! Yesterday, for the first time in my life, I came on my period 28 days after my last period! Everything about this period is different but familiar… Today I feel like total shit and I cannot stop eating, but I know why and for the first time in three years I feel like me and my body are on the same page, yipee!’

Oh young, naive girl. I don’t know where I got the idea that this was the dawn of a new age because this next cycle would go on to be 44 days, and the following would be 47. What is consistent on my Clue though, is the increase in cramps and ovulation pain. Around this time paracetamol stopped hacking it and I moved onto ibuprofen. Like sore boobs, ovulation pain was not something I experienced before I went on the pill. I have, until now, categorised it as sharp, often breathtaking pain, towards one side below my belly button, usually the right side.

Once I started having sex again, the occurrence of these pains was no longer limited to where I was in my cycle. Suddenly I was having ovulation pain and period cramps three out of four weeks of a cycle, and recently four out of four (or five out of five). This includes weeks and months where I deliberately stop having sex, the pain continues regardless of my sex life, but is definitely worse when it’s active.

Yet, it now seems that those pains are not ‘period cramps’ or ‘ovulation pain’. After last week’s ruling that whatever is causing my pain it is not gynaecological, I am stumped for how exactly I now talk about my pain. One option is to shut up and not say anything, quit a lifetime habit of moaning and leave my friends and family in peace. One thing that I’m learning to be really difficult about pain, especially chronic pain disorders, which it now seems is a group I may belong to, is that if you don’t say anything nothing happens. The only way anyone is going to know something is wrong is if you say something aloud.

There is nothing, bar a heavy period and a bit of bloating, that projects my pain into the physical world. Which means everyone is going to think you’re fine unless you moan, but if you moan all the time then it’s fucking annoying for everyone. But how else do you express that you’re unwell? I need a metaphysical censor above my head. It’s a concept I find really tricky to get my head around.

Now though, the language I have been using to express that pain is redundant and incorrect. I have focussed so much on my pain-cycle connection that it is incredibly difficult to disassociate my pain from my menstrual cycle. However, the raving pedantic within me can’t get on board with using now incorrect terms. I daren’t start saying ‘ow my bladder hurts’ because in a year’s time we’ll have probably moved onto my bowel or something else. It does of course all come under the category of pelvic pain but there’s something very clinical about ‘ow my pelvic area hurts’.

I need to find a new language for articulating this pain – any suggestions would be greatly appreciated. So far all I have is Twilight Saga’s Jane blank staring while whispering ‘pain’.

In the meantime, I might channel 2016 diary Hilary’s bizzaro way of articulating pain – with utter nonsense and writing a novel…

Update: since I wrote this my sister showed me this picture. Could this be the language I’ve been needing to moan about my pain?!

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August 29, 2017