Tag: dysmenorrhea

  • Farewell Ovulation – Going Back on the Pill #Periodically 19

    Farewell Ovulation – Going Back on the Pill #Periodically 19

    In news that was both disappointing and not at all unsurprising, my new doctor and I recently agreed that I will be going back on the pill. I’ve known for some time that the pill was likely to be the quickest source of relief for my dysmenorrhea (painful periods), menorrhagia (heavy periods), dyspareunia (painful sexual intercourse) and general pelvic pain, but it was an outcome I wanted to avoid given my experience with the pill in the past. For details read A Tale of Two Pills and #Periodically 13.

    The decision, in the end, wasn’t nearly as hard as I thought it would be. The quickest way for me to get some relief at the moment is to stop ovulating, and the combined pill does just that. Getting the prescription was thought-provoking though:

    Having been on Rigevidon (combined) and Cerelle (mini) in the past my main qualm was that I wanted to try a different dosage or brand this time. Now, because of the sad old state of our NHS, my gynaecology appointment was outsourced privately, so when the doc said I could go on Microgynon I nearly fell off my chair. Microgynon is technically the same as Rigevidon, it’s made up of a synthetic oestrogen and a synthetic progesterone that you take 21 days in a row and then you have a withdrawal bleed for a week – standard pill talk. BUT, Microgynon is the pill many my friends and sisters started on, had no problems with but were unexpectedly taken off of. Many of them have been switched to Rigevidon for no apparent reason. Maybe it’s paranoia but I am very suspicious that Rigevidon is simply cheaper than Microgynon.

    The gynae gave me a two month prescription of Microgynon but it was a private prescription. The doctor recommended I take it to my GP and ask them to refill it so I could get it free on the NHS, since it’s contraception. I am doing exactly this when my GP says, “I’m going to put you on something called Rigevidon, it’s basically the same thing” – I was furious. So I said, “no, it’s going to be Microgynon or nothing, that’s the only reason I agreed to go back on the pill. ” I was ready for a fight, but he quickly said, “OK” and printed out a prescription for six months of Microgynon. I was floored that it was so easy to get what I wanted, which only further makes me suspicious that the problem with Microgynon and Rigevidon is a price one – but, I should add, that is pure speculation (but still, #SaveOurNHS).

    So now I have the prescription the real drama starts. Over two and a half years ago I decided to come off the pill for several reasons. They were mostly because I had ended a relationship and wasn’t looking to get giggy with it, I wanted to try and get my sex drive back and to also get my mind back to something I recognised. I got so much more than I bargained for coming off the pill, good and bad. I got a new lease of life and creativity, my boobs dropped two cup sizes (to my delight), the world literally smelt different, I rediscovered my libido and I started having periods again. But equally, my periods were more painful than I remembered them being before, my skin got worse, I started spending money on sanitary products again and I discovered PMS. At that point in time, the pros outweighed the cons. The psychological benefits I felt coming off the pill were huge, and being able to track all these changes on Clue meant I could exploit them.

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    All good things come to an end however, and the last year has offered fresh pre, peri and post menstrual and ovulation symptoms and complications. As I’ve mentioned (a lot, sorry) discovering that sex hurt when it didn’t used to, was a real blow to my relationship with my body (and romantic interests) – what good was it to have my libido back if I couldn’t use it? My periods have left me exhausted and even grumpier than normal because I’ve become anaemic, and I’ve grown at least one hemorrhagic cyst, though there’s a lot of evidence to suggest there have been a few cysts that have been and gone.

    There are a couple of things people have said to me since I found out I would be going back on the pill that I would like to address. I stand by what I’ve said about hormonal birth control in the past – I think it’s shit. There has to be a better way and I am confident there will be soon – I’m talking to you FemTech engineers. Since I am currently the most single and unsexed I have been since adolescence, my reasons for going on the pill at the moment are not for birth control. I still think the pill is a sorry excuse for birth control, one that has brought about both hugely beneficial social changes and immense personal problems. It is a concept that demands lots of criticism. This time, I am going on the pill to deliberately mess with my menstrual cycle in the hope of getting some relief. It might fix my problems, it might just ease my symptoms for a while, it might do nothing, hell, it could even make things worse, but without having more potentially disappointing surgery, it is my only option for now.

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    The other thing I’ve been asked is “do you think you’ll be paranoid about the negatives of the pill this time round, and therefore never give it a fair chance?” I thought so at first, but I am actually feeling really open minded about it. December was a real toughie pain-wise and anything that offers relief is my friend at the moment – it is worth a shot.

    The last two years and seven months have seen twenty-six cycles – something I know thanks to the wonders of Femtech, particularly Clue. I have gotten to know my body in crazy amounts of detail, which has been both a blessing and a curse. I am really sad to be leaving this period (punny) of time behind, but I am going to try and see it as an opportunity. Since I have been tracking my cycles in great detail all this time, I am really going to be able to see the changes, good and bad, that the pill brings – plus, I get to try out Clue’s pill tracking functions for the first time. See, I’m already seeing the bright side.

    I won’t be starting the pill for a couple of weeks, and I have no doubt that the first few months will be a little wild, but in the mean time I’m going to relish the natural peaks and falls of my hormones and look forward to less-pain in the next few months.

    And to end this long (sorry) love letter to my natural menstrual cycle, I would just like to acknowledge that although I have tracked over 100 days of pain medication consumption during the last year or so, I have also tracked over 200 days of feeling happy, so that’s nice.

    Going on the pill means I will be cutting my trial of Natural Cycles short so my review will be coming sooner than planned. Let me know on Twitter what you would like to hear about my experience with Natural Cycles and I’ll try to fit my responses in. 

  • “Can I examine you?” #Periodically 18

    “Can I examine you?” #Periodically 18

    Covering all bases here, Happy 2018 #Periodically readers! We left off with me on Mefanamic Acid and iron tablets to help with period pain and heavy bleeding, for more details on that read: #Periodically 17. Today however, I have news, good and bad, a diagnosis and a potential solution, but it’s all rather bitter sweet.

    TW/Disclaimer: I briefly touch upon mental health in this blog and as serious as I consider discussions on mental health to be, I do approach the subject with a little bit of humour. Making light of something isn’t always mockery, sometimes it’s a brilliant coping mechanism and an even better way to banish demons – even those of the vaginal kind. 

    I was going to delve right in and give you the gossip from my gynae appointment last week, but having flicked through my December diary entries, I realise there’s a whole load of crap that needs to come before that, feel free to skip ahead. Warning, moaning ahead.

    Just over a month ago we had some snow here in Essex. It only lasted a day but for about four seconds of this particular snow day, I pulled my twenty-seven year old sister two metres across the garden in a sled. The next morning I woke with an excruciating backache. Back pain is something I’ve dealt with for years, especially when on my period, but this was something else. Assuming it was because of the spontaneous sled pulling, I dosed up on ibuprofen and took it easy. A lot of the pain was intensified to my lower back and got particularly bad at night when I was sitting or lying down, at which point it was accompanied by some delightful shooting, tugging and tearing pains across my pelvic area, front and back.

    After ten days of my moaning being even more annoying for my family than normal, I went to the doctors to check this wasn’t a womb-related pain. The delightful new doctor I had the pleasure of seeing basically laughed at me for expecting the pain to go away so quickly, and when I explained the fact that “hey, I’m in a lot of pain most of the time anyway and this is a bit much and I think I’m going to lose my mind” he did a nice, patronising head tilt and said, “so how long have you had this tummy ache?” Have you ever wanted to flick someone in the face, Rachel and Monica style?giphy (4)

    The pain was quickly accompanied by some intense nausea, which I now believe was caused by the iron tablets. I had some really disturbing nights’ sleep for a while in December, so I stopped taking them for a couple of days and immediately felt better. Since I’ve been back on them it’s been OK, so I think it was just an acclimatisation thing. When the doctor couldn’t do anything for my back my mum insisted I got a sports massage, my first since the good ol’ marathon days. I don’t actually think this helped at all, but it turns out the masseur happened to have endometriosis, PCOS and a one year-old, so it served as an enlightening therapy session, if only emotional. The backache went away while I was on my period curiously enough, it’s back now, but honestly I think I’ve gotten used to it. I am wondering if perhaps it has been caused by the fact I probably carry myself awkwardly because of the pelvic pain and it’s therefore referred elsewhere, but the fact it hasn’t healed like a normal muscle injury does leave me wondering if it is just the next phase of Project Pelvic Pain.

    So I started 2018 with my two favourite things; a period and a visit to the gynaecologist – yahoo, lucky me! Going into the appointment I had two things in mind: a) I hope its a female gynae and b) I think I’m going to come out with a prescription for the pill. Well the gynae was a man so that was an excellent start. I’ve never been bothered about having a male doctor for “intimate” situations, it’s more that in Swansea Dr M asked me what was wrong and then interrupted me every time I spoke – all that resulted in was fruitless surgery and a dodgy belly button. I wanted things to be different this time. Unfortunately, things started the same way. He asked me what my symptoms were and the moment I opened my mouth he just started talking over me and before I knew it he was saying, “so we need to get some hormones in you” and I just said “NO.” Happily, he shut up and listened while I explained that this was no longer just a situation of bad period pain. I told him that the pain and the repercussions of it were creeping in my life in serious and unwelcome ways and he finally said the words I’ve always wanted to hear: “can I examine you?” For avid #Periodically readers, you’ll know this is a momentous moment. Read: Why didn’t the gynae look at my vagina? to see why.

    This was horribly awkward because I was on my period but also because the chaperone, who is there to make me feel comfortable, got waaaay too close while I was changing. But it turns out, the exam was uncomfortable for another reason.

    Reclothed and a little lubey, I sat back down at his desk and he immediately said “OK you have a superficial problem too, it’s not just your internal system”. I didn’t even care what it was at this point, I just wanted to cry about the fact that all it took was a 30 second exam for someone to finally be like “oh yeah, there’s a problem”. He went on to explain that some of my pain, specifically my dyspareunia (pain during sex) is being caused by the uncontrolled clenching of my vagina upon penetration. Yep, I just wrote that #sharingiscaring. This has a name, vaginismus, sexy right? So he starts listing the treatments for vaginismus; “definitely counselling, probably physio and possibly anti-depressants”. I should have been fairly concerned at this point, but instead, my mind immediately went to Charlotte in Sex and the City… 

    I’m not surprised, given the difficulty of pelvic examinations in the past, but I am not exactly comforted by this diagnosis as my dyspareunia is described as deep dyspareunia, meaning the pain I experience is more internal than my vagina, it is “deep”. To me it feels a bit like a chicken or the egg situation. Did I always have vaginismus, or did I get vaginismus because my vagina is like “wow don’t go in there, it’s a mess”. My instinct is the latter, but I guess we’ll find out in therapy! My gynae’s referred solutions have to be arranged by my GP and so it’s probably going to take a while, but this feels like progress, albeit it disheartening, worrying and a little sad.

    The other result of the gynae appointment was that I now have, as predicted, a pill prescription. I expressed all my concerns, and other doctors’ concerns regarding DVT and breast cancer, but the gynae was confident that going on the pill will not only help with my symptoms, but that it has the potential to cure them. We also had a discussion about what pill I am *happy* to go on. It could of course be that if I come off the pill in two years everything will come back, and it could also being that going on the pill will do sod all to help me, but at this point it’s worth a shot. I won’t be starting the pill for a few weeks, so I’ll write a blog soon about my thoughts and feelings about going back on – as you can imagine, there are a lot.

    Sorry this was a long one, but me and my depressed vagina needed some processing time before writing this. There’ll be more, but in the mean time I’m going to go and learn a little more about vaginismus, how I feel about going back on the pill and maybe I’ll even re-read Naomi Wolf’s chapter about the Vagina-Brain connection – I feel like I’m going to need it more than ever.

    How are we feeling about the new #Periodically picture? Yay, nay?

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  • Persistence – #Periodically 17

    Persistence – #Periodically 17

    Long time no #Periodically, but don’t fear I’m back with another exciting instalment of “WTF is happening in Hilary’s pelvis” – I’m sure you were all anxiously waiting.

    So we left off with the discovery of two cysts, one functional (good), one hemorrhagic (bad) on my right ovary. The protocol is to wait six weeks to see if they go or grow. I also had a blood test taken the day after the first internal ultrasound and was informed there was something in those blood results that I needed to see a doctor about, but typically (#ToryBritain) the first available appointment was six weeks away. Conveniently though, it was scheduled for the day after the follow up ultrasound.

    I had a couple of really rough weeks in the middle of the wait for “answers”. I was both stressing about what was wrong with my blood (who tests for PCOS and Ovarian Cancer, says something’s wrong but doesn’t tell you what?!), dealing with a sudden and random horrible outbreak of acne and a flare-up of top-notch pain. I was pretty miserable company for a fortnight (sorry friends and family – thank you for not disowning me).

    Let’s throw it back to November 2016 for a second, where the first blood results I had to search for a problem revealed nothing. I did have slightly higher levels of androgens (male hormones) than normal, but nothing that warranted suspicion of PCOS (Polycystic Ovarian Syndrome). So when they found the cysts and something in my blood this November, I couldn’t help but wonder if I had just noticed symptoms of PCOS really early, and the androgens were now at a higher level and had been picked up in my blood. So what does any sane person do in this situation? I GOOGLED. I’m actually glad I did as I quickly learnt the surprising fact that despite the name, polycystic ovaries does not involve many cysts. It involves much smaller bubbles of fluid that grown on the ovaries in abundance. I don’t have that, so I relaxed. But my hairy disposition and sudden acne break out didn’t help calm my PCOS suspicions.

    Now because life is cruel, the six weeks came around and I was due on my period the exact same day as the internal ultrasound. While offering some potential technical problems, it also meant I was super on edge as I tried to suppress my PMS in the hope of postponing my period (this actually worked remarkably well but it also postponed and intensified my PMS, would not recommend). The internal ultrasound goes smoothly albeit painfully, and the sonographer immediately says “oooooh no,” as she sees that the hemorrhagic cyst is still there. “That should have gone,” she said. Problem is, it didn’t grow either, which, she explained, means it’s unlikely I will be referred for any kind of treatment. So I have a “persistent hemorrhagic cyst”.

    The next day I show up bright, early and menstruating for my blood test results. Happily, it was nothing too serious, just that my iron levels are a tiny bit low, which is consistent with having too heavy periods. Unfortunately, I hadn’t seen this doctor before, and having to explain all my symptoms all over again mid the hormonal meltdown I was having, resulted in some really attractive sobbing as I explained the last few years of pills, pain and frustration. This sobbing only worsened when she informed me that contrary to what I’d been told, Dr C never actually got around to referring me to a gynae in Essex. I explained to her that a big part of my frustration is that in 2015 I ran a marathon, in 2016 I ran a marathon but in 2017 I need a lie down after a dog walk. Not being able to have sex isn’t great either obviously, but exercise is a really great way of feeling like you have some control over your body, it’s difficult losing that control.

    However, the sobbing seems to have worked as Dr E has referred me to a local hospital, which should be quicker, and like the God she clearly is, she gave me something. I remain a little perplexed that no one has ever even offered me the medication she prescribed before, as its literal purpose is lightening menstrual flow and potentially easing period pain. It’s non-hormonal and I take it only when I’m on – pixie dust, clearly (Mefenamic Acid IRL). I can’t say I’ve noticed a huge difference thus far, but my period pain has been a little more manageable. I can’t take ibuprofen with it, which makes me nervous that if it doesn’t work then my main source of pain relief is out the window, but we’ll give it a good ol’ college try.

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    The latest venture.

    There are lots of frustrating things about this situation, but the two I’ve learnt this week are that the combined pill might stop the cysts from growing in the first place but that no doctor wants to put me on it because of DVT and breast cancer risk factors. The other is that both the sonographer and Dr E’s response to my pain outside of my period has been to say, “yes, sometimes cysts can be painful”. Trying to communicate to them that whatever is causing my pain, cyst or otherwise, is really painful often is proving difficult.

    So with a bit of persistence, like the pesky cyst, I’ve managed to get something to help with period pain, iron tablets that should help with sleepiness, and hopefully a decent and quick referral. It’s not exactly good news, but it’s something.

    Confused? Start the saga from the beginning here.